Showing posts with label events. Show all posts
Showing posts with label events. Show all posts

Friday, April 15, 2011

Robert MacNeil Returns to PBS Series on Autism beginning April 18





The
PBS TV stations will air a series on Autism; narrated by Robert MacNeil (of the MacNeil Lehrer News Hour) starting Monday 18 April. Please check your local listing for stations and time. Please forward this information with friends and family and share it as widely as possible.

It is important to increase awareness. Increased awareness brings out the the public support for the policy change that will eventually impacts the lives of our families. It has happened because unfortunately, Robert MacNeil's grandson has developed autism.
Here are two links to this news:

PBS NEWSHOUR: Autism Diagnoses Bring Slew of Costs for Families
Robert MacNeil Returns to Newshour for 'Autism Today' Series

Thank You. Khalid Rehman

Sunday, March 27, 2011

Dr. Sid Baker author of Detoxification and Healing at Beth Israel










Dr. Sidney Baker author of
Detoxification and Healing: The Key to Optimal Health on "Autism, Alzheimer's and Parkinson's - Treatment Options Under the Autoimmune Umbrella.


Thursday, April 7, 2011 - 6:30 - 8:30 pm

Location: Beth Israel Medical Center
2nd Floor Conference Center
10 Union Square East
NY, NY

More people are afflicted with chronic illness than ever before. Come learn what many of these autoimmune disorders have in common and how to treat them.

Dr. Sid Baker is most well known for his books and treatment of children on the Autism Spectrum. However, he has been treating both children and adults with a vast array of chronic illness for years. He is going to explain how many of these autoimmune diseases actually have some common underlying causes and that many of the treatment options tend to overlap. He plans to go over some of the more common alternative treatment options as well as some of the newer ones. Dr. Baker will cite examples from his own case studies drawn from patients he has treated over the years that have made significant progress with the treatment options he will describe.

This event will be very helpful for those who suffer from a chronic illness and for those wanting to prevent one. Come learn about some exciting healing options under the autoimmune umbrella and walk away armed with some important information that can make a difference in yours or someone you knows life.

Dr Baker received his undergraduate, medical, and specialty training from Yale where he held a faculty position from 1969 to 1989. His medical career included being Peace Corps Volunteer, family practitioner, Director of the Gesell Institute of Human Development in New Haven, and private practice focusing on complex chronic illness in adults and children, now in Sag Harbor, NY.

His books include two co-authored Gesell Institute books on child development. He is the author of Detoxification and Healing and The Circadian Prescription and co-author of Autism: Effective Biomedical Treatments. He is Associate Editor of the Journal of Integrative Medicine.

His research interests include the development of a patented coding system for medical narrative that forms the basis for Autism360.org, a website funded by The Moody's Foundation providing interchange between individual and collective medical experience and "letting the data talk."

Come join us for this FREE informative event. Refreshments will be served
Please RSVP to Stacey Purro, LCSW at 212-844-8431 or email at spurro@chpnet.org

Location: Beth Israel Medical Center
10 Union Square East - NY, NY - 2nd Floor Conference Center
6:30 - 8:30 pm

Worldwide Autism Awareness Event in NYC at City Hall










Join us on Tuesday, April 5th from 6 to 7 pm on the steps of City Hall in New York City as we commemorate Worldwide Autism Awareness Month and honor Mary Holland with our annual "Spirit of Hope" award.


Mary Holland is a lawyer with a deep background in human rights. She is a tireless advocate in the fight to recognize the rights of people with autism. In addition to her support of NAA NY Metro, Mary is a co-founder and the director of the Elizabeth Birt Center for Autism Law and Advocacy and a co-founder and board member of the Center for Personal Rights. She is an editor and author of the recently released book Vaccine Epidemic.


Gather with family and friends to raise public awareness. If we don't, who will? Other speakers will include ASD families talking about their challenges and successes.


Wear blue to show your support for autism awareness.


The program will start promptly at 6PM.
There are two entrances to the City Hall steps. You may enter either from is from Broadway at the intersection of Warren Street, or from Park Row (across from Pace University).
Inform the security guard at the gate that you are attending the Autism Event.


For more information, click here.

Wednesday, March 16, 2011

NYC GF EVENT: BAGELS AND BOWLING THIS SUNDAY to Benefit NAA-NY Metro!








Come to BOWL at The NAA NY METRO 2nd Annual Bowlathon this Sunday! RSVP HERE TO JOIN US AT THE BOWLATHON! The food is all gluten free! It is $20 per bowler! Udi's Gluten Free Bagels and Glow Gluten Free Cookies and Zico Coconut Water are donating food!!! GF bagels and bowling--and cookies!!! Pretty good deal for $20 per bowler or $100 for bowling team of 8!

Bowlmor Lanes • 110 University Place • NYC
Sunday, March 20 • 10:00 am - 12:30 pm


This year, the NAA NY Metro Chapter was able to give 11 families $500 Helping Hand Grants to help them with therapy expenses. In addition, we are holding a summer program during the last two weeks of August for 37 children. The total cost of these programs was approximately $20,500 and they would not have been possible without the money raised at last year’s Bowlathon. To continue them, we need to have a successful Bowlathon again this year. So far, we have raised about $29,000, but we have a long way to go to at least reach the $50,000 we raised last year.

Please RSVP HERE TO COME BOWL!.
Click here to donate to my team -->DONATE TO THE NAA-NY Metro Chapter!

Saturday, March 27, 2010

Bowlathon Success -- Thanks to Everyone!

Bowlathon! March 21st, 2010, Bowlmor Lanes, Manhattan. Here is a recap from Peggy Becker, NAA-NY Metro’s Secretary:

Wow!!!! What an exciting day. Stuart Flaum and I, with the help of Liz Elting and others on our board, had been preparing for this, our first fundraiser, for quite some time and at last the day arrived. Our Bowlathon was this past Sunday.

We asked people to organize teams that then solicited donations from their friends, family, etc. Our goal was to raise $30,000 and, with donations still coming in, we are at almost $53,000! We used Firstgiving (platform to support online giving) to collect donations - here is a link to our page.

It was a great fun, family event - each team had a lane - we took over a whole floor of the bowling alley, 22 lanes - and everyone bowled. The bowling alley gave us a discounted rate. We played mellow jazz, turned off the flashing neon lights and had a quiet room (AKA the VIP room) to escape to if the din overwhelmed anyone.

Our own Kirstin - who is an amazing chef - created delicious breakfast food that was diet sensitive - GFCF and SF (soy free). Another corporate sponsor donated lemonade stand kits as party favors for the kids. Another friend helped me make a DVD slide show with images from our corporate sponsors, our fundraisers and images from our events over the last year or so.

We felt the love! We had over 100 people bowling and over 500 donors - many of them new to our organization. It was such a great event and we are really excited for the programs that we can initiate with the money we raised. Check out our Facebook Fan Page for more photos from the event!

A huge thank you to our sponsors:
And to our bowling teams:
  • Floortime Friends
  • Adaptations
  • Im So Elmys Special Services
  • Luger’s Baracudas
  • Team Rehman
  • Team Alex
  • Team Createabilities
  • Team Daniel
  • Team Henry & Scott
  • Team Jojo
  • Team Learning Spring
  • Team Leslie
  • Team Michael
  • The GF Cereal Bowlers
  • The Jaguars
  • The Rebecca Ballers
  • Transperfect
  • What to Feed Your Kids
And, of course, to our donors (too numerous to list)!

Tuesday, November 11, 2008

SCD Recipes from Autism Help At Home


These are recipes courtesy of AutismHelpAtHome who led a Specific Carbohydrate Diet (SCD) cooking class for members of our Naavigator program.

Seared lamb chops

Grass fed rib lamb chops if possible, coat with olive oil, coconut oil, or both, season well with sea salt and ground pepper, sear on medium heat till browned (about 3 minutes depending on thickness), turn over to finish off the other side. Remove from pan and allow to rest, then pour juices and meat back in to pan, to coat in remaining juices.

Turkey cranberry meatballs

Organic turkey meat (about half a pound), ground up in food processor with a few precooked baby carrots, a small handful of roughly chopped Italian or curly parsley, half a cup of organic raw cranberries which have simmered in water for an hour or so, a teaspoonful of sage or poultry seasoning, two roughly chopped scallions, sea salt to taste, ground pepper, two cloves fresh garlic and a bit of olive oil or other fat of choice. Roll into balls and place in medium hot cast iron skillet with a little fat in it, turn when golden brown, reduce heat to finish off, cooking all sides evenly.

Savory zucchini sauté
Can be done with or without meat, but today I chose meat. Brown half a pound of ground meat of your choice (we are using grass-fed beef) with a drizzle of olive oil, a handful of chopped organic peppers, chopped red or yellow onion, and one large thin sliced zucchini. Add 2 chopped garlic cloves, two or three tablespoonfuls of SCD tomato sauce, two teaspoonfuls of oregano, sea salt to taste, ground black pepper and a handful of chopped parsley. Then pour about two cups of organic chicken broth over, stir and simmer with lid on till most liquid is absorbed. Adjust salt.

Chicken apple pancakes with honey cider syrup
Largely chop one raw boneless skinless chicken breast and simmer in water or broth till just cooked (not pink) then drain and put into food processor with a few pre-cooked carrots, one large peeled deseeded chopped apple, teaspoonful of sea salt, dash of honey, dash of cinnamon and 3 whole eggs. Process till smooth, should be a pasty consistency. Spoon batter onto greased medium hot skillet which has heated for at least ten minutes to avoid sticking. Turn when bottom side is browned, being careful to not break.
Syrup: Pour two cups apple cider into sauce pan with half a cup of honey and one cinnamon stick if you have one, and a pinch of sea salt. Simmer and reduce by about half. Adjust honey for sweetness. You can add SCD vanilla at the end.

Roasted butternut fries in duck fat
Peel butternut squash, halve it, scrape out seeds and slice into spears. Toss them in duck fat and some coconut oil, season with sea salt and place on baking sheet (lined with parchment paper if non-stick metal) in the oven at 400 for 25 minutes or until browned, carefully turning and cooking till done.

Warm cinnamon pears with gorgonzola and roasted figs
Peel, core, and quarter 4 ripe Bartlett pears. Place in saucepan with water half way up. Add two teaspoonfuls of cinnamon, _ cup of honey, pinch of sea salt and simmer covered till tender (about 7 minutes). While pears are simmering, slice unpeeled figs in skillet with a little clarified butter to brown. Stir pears gently to coat, then remove from heat and let cool. Remove from pan to cut into large chunks while reducing left over juices in the pan. Return chunks to pan to toss gently then plate with roasted fig halves and chunks of chilled gorgonzola.

Spaghetti squash with parmesan
Cut large spaghetti squash in half and scrape out seeds, season with sea salt, ground pepper and olive oil, then place open sides down onto baking sheet. Bake for 45 minutes at 375. Use fork to twist flesh around inside and drizzle with olive oil or coconut oil, or clarified butter if allowed. Grate fresh parmesan cheese (parm regianno is preferred), over top, and serve.

Spiced butternut squash pudding
Slice a butternut squash in half and scrape insides, then place open face down onto baking sheet for 50 minutes at 400. Let cool then scrape into bowl, and mix with 2 tablespoonfuls of honey, heavy dash of cinnamon, heavy dash of nutmeg, small dash of ground cloves, sea salt and ground pepper. Add a little olive or safflower oil and whip up till smooth. Serve warm or chilled in custard cups. Can top with a little toasted unsweetened coconut flakes.

Organic ginger tea
Grate about 4 tablespoonfuls of unpeeled organic ginger root and place in the basket of a teapot filled _ full of hot boiled water. Steep for five or six minutes. Add 3 tablespoonfuls of honey and juice of half a lemon, then stir and strain into mugs.

To make ghee:
Very slowly melt one pound of unsalted organic butter in a sauce pan on medium heat. As the butter melts it will begin to boil and separate (white froth on top with sediment settling to the bottom of the pan). Keep the butter simmering slowly and steadily. Do not stir or agitate the pan. Allow the butter to continue to cook until the bubbling noise quiets down, the sediment at the bottom of the pan starts to turn golden brown (you can check the color of the sediment by gently tilting the pan), and the liquid under the froth begins to turn an amber color (it usually takes about 20 minutes). The smell also changes to that of freshly baked croissants. All these signs indicate that all the water has evaporated. Leave the cooked ghee to cool for half an hour, then carefully spoon off the whey solids on top and discard. Line a strainer with either some cheese cloth or unbleached paper towel, and strain the ghee into sterilized jars. The ghee will turn hard when cooled and look yellow in color - it melts quickly when exposed to heat. If it is properly made, ghee will keep for over a year, even outside the fridge.

Click here for a youtube demonstration of making ghee.

Tuesday, November 4, 2008

Green Our Vaccines Rally


A personal story of the rally.

by Sabeeha Rehman

WE DID IT!!!!!

The Green Our Vaccines Rally was beautiful.

Khalid drove Tom Gomez and me to White Plains. Tom was at my apartment 2 am. We left at 2 am. After getting to the Courthouse and not being able to find the entrance, and after several call, we located our group. Khalid dropped us and drove back. I was praying that he make it back o.k.; weather was bad and visibility was worse. We waited in Lisa's car until the others came. And that is where I met Nancy Gardello, who had just volunteered to chair the Events Committee. She is an amazing person! We are very lucky to have her on board. Then it was, "lets go" and we ran over, with our umbrellas, braving the rain and waited outside the courthouse for the bus. Lisa and Natalie had brought water, breakfast bars, goodies, and anything you can think off to keep us comfortable. We piled into the bus and took off at 3:45. And then we froze. The temperature had to be sub-freezing in the bus, and outside it was dark and raining. The driver had to keep the temperature low for a number of reasons, but thats another story. I was dressed for a hot day and had no more than a light cotton windbreaker on me. Khalid called me around 4:30 to let me know that he was home. At 5:00 we got to the NJ pick up and promptly got lost. We went all the way in the wrong direction, and several calls later, found our way to the park-n-ride and picked up our NJ friends. And then Lisa started distributing her goodies for breakfast and everyone lightened up. There were children in the bus, fast asleep. Bless them! We walked down the aisles, making acquaintances, sharing experiences, exchanging cards, and chatting all the way. Even I was chatting. Natalie, the organizer, gave out green poster boards and we posted our children's photo on each poster board. Just that weekend, Saadia had given me 4x6 of Omar's.We hit traffic getting close and into DC and got to the Washington Monument at 9:30 am. We stepped out into the hot air and instantly thawed. It had stopped raining and the sun was shining on us.

Amy and Mary had taken the sensible train ride, leaving at 5am. So they spent $100 a piece, but they got all that sleep.

From that point on, it was sheer heavenly. People in green tee-shirts saying 'Green Our Vaccines' were all over the place. We were immediately directed to the site, and all the way, volunteers in green tee shirts were waving us along. I wasn't sure how we would meet up with Amy and Mary. But as soon as we got to the end of the line, there they were, Amy and Mary. And then John Gilmore shows up. We couldn't have planned it better. Cameras were whipped out, and we were posing with our posterboards. The place was lined up with moms and dads with their posters, childrens' photos all over the place, and Green-Our-Vaccine shirts, and posters that said, Too Many Too Soon". We couldn't spot Jenny or Jim, but hey, we were there, and thats what counted.

Louis Conte handed out Green Flyers to New Yorkers, on two bills in the Assembly. We started calling out, "New Yorkers?", and when the hands went up, we handed them the flyer. At 10:00 am promptly, the walk began. We walked out of the monument grounds, onto the boulevard which had been closed to traffic. The cops on their motorcyles were escorting us, and the Press was following on the sidewalks. At one point, I walked up to the Press Photographer, put my poster in front of his camera and said, "Take his picture. This is Omar. He is my grandson, and he was injured by Vaccines'. The camera-man stopped, the reporter stopped, and in the next instant, I was being interviewed. "How old is he? When was he diagnosed? Are you angry? etc etc." And then I waved goodbye and ran over to join my team. In my haste, I didn't ask which network they were covering - darn it!

We then stopped by in front of the HHS building and protests rang out. We turned our poster boards to face the building and stood there, protesting. It was exhilarating! A 1.3 mile later, we turned in towards the Capital grounds, and the dome, looming above the green pastures, and thousands of us filing into the grounds, was a breathtaking view. All these parents and grandparents had made it there, took time off, drove and flew long distances, and were there to make a statement for their children. A stage had been set up and the rally began. It had gotten hot and the volunteers were giving out water bottles. Umbrellas brought for the rain, now shielded us from the sun.The first speakers were physicians, one of them from the American Academy of Pediatrics, all in support of cleaning the vaccines, and customizing their administration to the needs of the child, more intervals, etc. Robert Kennedy Jr. spoke at length, and addressing the Press he challenged them on their handling of the vaccine issue. He said to them that each time a piece of research comes out, you (the press) ask CDC for their opinion; you should be reviewing the research and drawing your own conclusions; its not rocket science. He then took each research material, relayed the spin that the CDC had given, and laid out the facts, setting the record straight. Jim Carrey in my opinion, gave the best performance. I call it a performance because it takes star quality sometimes to package an issue. His appeal was factual and emotional. He said that our children are messengers, are special, and their message to us is to make us change agents and clean the world. They were brought here for a reason. Through them we have learnt to love; they have brought a unique gift to us, and it is our calling to open these gifts and share them. Jenny was the last speaker, and she was herself all the way. She always inspires. This time, her speech was scripted, but it was moving nevertheless. At the end, she asked us all to hold up the photos of our children for the Press to see, and as all hands went up, with the photos of children smiling down on us, the music played, and I cried.

And then it was over. It almost felt anti-climatic. It felt like unfinished business. I wanted to hold on to the moment, relish it, cry a little more, and just sit there on the grass, enveloping the feeling. But we had to re-group, assemble, find our bus, so we got into action. Amy and Mary were to join us on the bus on the return trip.

Lisa Rudley, God bless her, and gone off to see her congresswoman with a few others. We made calls, rounded everyone up, hailed our bus, and piled in. Then we made a few rounds in the bus until Lisa and company caught up with us. Then we were off.

Lunch boxes popped open, and we were munching and chatting. People were talking about the rally, about the bills in the Assembly, about the bus trip to Albany next week, about their experiences with Autism, and the bus was buzzing. Lisa filled us in on her conversation with her legislator, and something she said, made me think, "Legislation is as important as Treatment".

When we got to NJ, we were beat. Lisa asked the bus driver to pull into a rest area and it was like heaven, to take a break. I just happened to glance up on the TV screen in the rest area, and there it was, or rather, there we were, "Green Our Vaccines Rally". I yelled out to all the others. They were all lined up in front of Starbucks. None of us had had our coffee that day. Those who caught my eye, I didn't know their names. So I yelled, "Rally, On TV," and pointed up to the TV. By the time a few ran up, the moment was gone.

By this time, I wasn't looking forward to a bus ride all the way to White Plains. We were planning to take the train back to New York from White Plains. Mary and Amy miraculously came up with Plan B. They are so practical and innovative. Two ladies sitting next to them offered to drive us in their mini-van from the NJ drop off point at exit 8A to the New Brunswick Train station. We could then ride straight into Penn Station. Bless them! There were 4 of us, Tom, Amy, Mary and me. So we got off at South Brunswick, said our goodbyes, and drove off to N.Brunswick. It was a long drive and for them to have taken us out of their way was very very nice of them. I was watching the clock. There was a train at 6pm and the next one at 6:41. If we could catch the 6pm, that would be great. We made it to the station at 5:45 and then we raced up the steps, up the escalator, to the machines. $10.50. Must be wrong. Over to the counter. $10.50 Got our tickets, and then the announcement came. "We apologize......6:15". No problem, at least its not a drive to White Plains. The train got us into Penn Station at 7:30, and it was 'goodbye' and 'see you' and 'get home safe'. I took the cross-town bus and walked in at 8:00 pm.

Khalid was waiting, wanted to know all about the rally. My daughter-in-law called, wanted to know all about the rally. Now I am at work, talking to everyone about the rally, and not getting any work done. Emails are coming in, thank you to the organizer emails, Thank you for coming emails, Norene volunteering for Program Committee email, Nancy wanting to move on with the Events Committee email, bills to support emails, bills to oppose emails........

Our work has just begun.