Friday, March 5, 2010

Tax Deductions for Parents with Special Needs Children



It’s that time of the year!

On March 3, 2010, NAA New York Metro invited Mark L. Berger, CPA, and Kim Mack Rosenberg to present on this timely topic. We had a standing-room only.

Mark Berger is the President of M.L. Berger & Company, Ltd, is a CPA with 20 years of experience, and a parent of a special needs child. Kim Mack Rosenberg is an attorney, is Vice-President and Treasurer of the NAA-New York Metro Chapter, and a savvy mother of a special needs child, who has done extensive research in this area and has many years of experience in developing a system to organize and document one’s deductions. Mark outlined the tax laws that pertain to individuals with special needs and highlighted the many (sometimes unexpected!) expenses that may qualify as medical tax deductions. Kim translated those principles into the techniques of organizing, documenting and substantiating an effective case for tax deductions.

The discussion was highly interactive with attendees raising key issue of particular concern to them. Mark and Kim provided very comprehensive handouts. Mark prepared a list of potential deductions that are relevant to special needs families and Kim provided a write up of her organizational strategies. Mark also provided copies of IRS Publication 502 – a great resource on medical deductions. Kim shared the basic form she uses to track her deductions as well as an annotated copy of an insurance explanation of benefits (“EOB”), showing where to find amounts that insurance might not have paid that may be deductible.

Mark explained that only medical expenses that exceed 7.5% of a family’s adjusted gross income are potentially deductible. The IRS has defined medical expenses in its Publication 502. Many parents were excited to hear that, besides the straightforward medical expenses like doctor’s visits, items like therapeutic schools, therapies, biomedical treatments, transportation related to medical expenses, and a number of other things may be deductible with appropriate substantiating information. Mark discussed with parents some of the limits on these deductions as well as what you need to show that your deductions are appropriate. Parents learned that a number of surprising things might be eligible as medical expenses.

Mark elaborated on Flex Accounts – which, he explained, for some families may be better than the 7.5% deduction. He also emphasized that one has to be careful not to take a second deduction, i.e. any expense credited to a Flex Account cannot be itemized as a tax deduction. Mark also discussed that married couples discuss with their own tax professional whether “Married Filing Separately” status made sense for them – he explained that for some families, this worked out better.

Kim offered a prescription for “how to prepare for your tax return” and tackle the mounds of documents and receipts that parents amass. The first rule of business: Get a record-keeping system that works for you. Next, file regularly. It doesn’t matter whether you use Quicken or a similar computer program or plastic files from the Container Store – file regularly. And then, back it up, be it on a hard drive, a flash drive, or in cyberspace.

Kim uses a pair of colorful plastic files that she has used for years (they are nice and sturdy) – but she reminded us that, while this worked for her, it was just an idea – we need to experiment to find what is right for each of us, otherwise, you won’t use it. Her large file is compartmentalized for Flex Spending to be submitted, Flex pending, Flex reimbursed, Insurance to submit, pending and paid as well as categories for medical deductions relevant to her family. The small file is for ‘small’ receipts like tolls, cab, groceries, prescriptions, etc. She explained how she processes flex spending and insurance claims -- as each file is processed, the paperwork moves from one compartment to the next, until the item is closed. She can then use these organized documents to make tax time more efficient for herself and her accountant.
She also discussed ways to track mileage, public transportation and taxis, and even ways to figure out whether the deduction for special foods – if available to you – is worth it for your family, since it is a lot of work figuring out the deductible amounts.
Hands shot up!
Attendees offered their tips – great tips!
And there were more questions, tips, and ideas that the audience shared.

Here is the handout for Tax Issues for Special Needs Families.

Thank you Kim!
Thank you Mark!
Sabeeha Rehman

Sunday, February 14, 2010

Special Diets for Autism Fair


Beth Monterosso, Mary Hernandez, and Sabeeha Rehman at NAA NYM Booth

See Photo Album

On Feb. 9, NAA NY Metro's Staten Island branch organized a Special Diets for Autism Resource Fair sponsored by the PTA of PS 37R on Staten Island.

Mary Hernandez, NAA New York Metro's liaison for the Staten Island branch, was instrumental in organizing the event, making the arrangements, and involving and integrating the chapter's activities with that of PS 37 and PATH. Mary contacted all the merchants who came to provide samples and information about their products. Participating vendors displayed their wares and offer free samples of their foods to the visitors who stopped by. Six gift certificates from local merchants were given out as door prizes and many offered discount coupons.

NAA New York Metro had a booth and had the opportunity to highlight the services that the chapter brings to families, educators and caregivers affected by ASD. The PATH Family center gave a presentation on its new facility where it provides recreational, nutritional, and educational services, as well as biomedical counseling.

Mary had prepared give-aways - brown bags packed with donated goodies from health-food vendors, individually packaged. Attendees took home a nicely packaged gift-bag of goodies for their children to savor.

Many thanks to PS 37R for the opportunity and for hosting the event.

Great job, Mary.

Sabeeha Rehman

Monday, February 8, 2010

Research Study: Request for Participation

By: Abbie Connolly

Finding a cure for autism is essential, but it is a long process. I am running a study which may help children with Autistic Spectrum Disorders and their families now. My name is Abbie Connolly and I am a doctoral candidate at the City University of New York. The subject of my research is the possible connection between language and behavioral levels of children with ASD and maternal stress and family functioning. I am hoping that my research may help programs develop more effective strategies for parents and families with children on the Spectrum in coping with the symptoms of autism

The participants in my study would be mothers of children with ASD. The children must be between the ages of 6-12 years old. They must be diagnosed with ASD (autism, Asperger's Disorder or PDD-NOS) by a medical doctor, neurologist, psychiatrist or licensed psychologist. The data will consist of a series of well-known questionnaires and background information for the mother to complete and one questionnaire for the child's teacher.

I assure you there are several steps to ensure the participants' privacy. I was approved by CUNY's Independent Review Board (#09-09-1836). If you would like to participate, please email your name and address to: connollycuny@aol.com and I will send you a letter of introduction and a consent form with a self addressed stamped envelope via post. When I receive signed consent, I will send you a packet of the questionnaires along with the teacher's questionnaire along with self addressed stamped envelopes. You may stop participation at any time. Please feel free to contact me at my email address if you have any questions.

Abbie Connolly

The NAA New York Metro chapter does not endorse any treatment, therapy, diet, protocol, nor any provider, individual or group. Any information provided at NAA-NYM presentations, meetings, on our website, or on our blog is provided for informational purposes only. Parents must of course make their own decisions concerning any treatment, therapy or provider. NAA-NYM recommends that families consult with an experienced doctor or other professional before commencing treatments or therapies for their children.

Friday, February 5, 2010

Laura Hynes, from ExtraoRDInaryminds, Speaks on RDI

Laura Hynes, from extraoRDInaryminds.org, spoke to the NAA-NY Metro Chapter about Relationship Development Intervention (RDI.) RDI is a treatment for individuals with neurodevelopmental problems which trains parents to engage in dynamic activities with their children so they can move away from static, rigid patterns of behavior.

Laura explained the ways in which neurotypical brains form connections allowing different areas of the brain to collaborate in a flexible way and how "dynamic connectivity" in typical brains allows a person to respond to changing and complex situations quickly and, when needed in an innovative way. That contrasts with ASD brain development where there is a rigidity in the connections and an underconnectivity, leading to a more rigid reliance on learned rules and static situations. She discussed the way the static intelligence (i.e., what we know) combines with dynamic intelligence (i.e., what we do with what we know) to create fully developed brain function.

RDI aims to develop that dynamic element for our children so that they are able to fully participate in all aspects of their lives. Laura discussed the importance of experience sharing language in reaching our children and drawing then out. She offered a number of easy "foundational" tips that parents could start using right away: comment (on actions, offering opinions and ideas), which is more open-ended and less predictable, rather than ask questions designed to elicit a specific response; use less language and more non-verbal communication (body language, facial expression, gesture); use more indirect prompts and fewer direct prompts. She also discussed creating opportunities of "productive uncertainty" where a child still feels safe but can be challenged and become curious - productive uncertainty is an opportunity for cognitive growth because it stretches you.

In RDI parents are their child's guides. While parents work with an RDI consultant to set goals and learn RDI techniques to achieve the goals, it is a parent-driven program, with the parents "doing RDI" with the child, not a therapist. By making parent the providers of the therapy, RDI respects and celebrates the parent-child connection.

To learn more about RDI, you can contact Laura Hynes. Here is an excerpt of her presentation:


Next Generation Beverage Makes A Generous Donation to the National Autism Association

Rich Wilson, Kim Mack Rosenberg, Sabeeha Rehman and NY Giant Brandon Jacobs

On January 21st, Next Generation Beverage sponsored an Action for Autism Gala to benefit NAA-NY Metro's parent organization -- the National Autism Association -- and the Eden II Programs. NAA-New York Metro Chapter accepted a donation of $5,000 on behalf of the National Autism Association. Representing NAA were New York Metro Chapter board members Sabeeha and Khalid Rehman, Kim Mack Rosenberg, Mary Hernandez, and Stuart Flaum. The event was held at the beautiful Marina Del Rey Caterers in Throgs Neck and special appearances were made by Brandon Jacobs of the NY Giants, Fernando Martinez of the NY Mets , and former NY Ranger Ron Greschner, who has founded the Ron Greschner Foundation to support autism research and awareness.



See photo album

Tuesday, January 12, 2010

SUPPORT GROUP

Dr. Lauren Tobing-Puente

NAA Support Group sessions are held on the first Thursday of the month. Our first NAA Support Group, held in October 2009, turned out to be a huge success. We had a wonderful group of ladies. There were moms from all five boroughs that had all different age children. We were really able to listen and support each other. It was also very easy to take something away from each conversation, even if it were not an issue that each of you were impacted by. The moderator, Dr. Lauren Tobing-Puente, was so warm and encouraging. It almost felt like we were just a bunch of women getting together in someone's living room talking about important things that relate to our children and our family. Many of the mom's expressed an interest in coming back to the support group next month. We are also looking forward to the new parents and caregivers that will join us at future meetings. Overall, its a great way to get out, meet and connect with parents facing the same challenges as you.
Check our website for dates and location.

Dara Berger

Wednesday, December 23, 2009

Holiday Party 2009














On Dec. 16 we held our 2nd annual Holiday Party for the NAA NY Metro Chapter in NYC. It was a wonderful event. It was made all the more special this year by our decision to invite all our past speakers from every event to come to the party as our honorees. So besides the incredibly hard working and passionate NAA NY Metro Chapter volunteer board and committee members, we also had many amazing parent warriors and some of the most gifted and special people who gave their time to create some memorable events for us to offer to our members.

It was extremely easy to get enveloped in a lengthy conversation with any one of these groups of people. The only other time you have the chance to gather this many interesting and caring people under one roof is at one of the many conferences. However, in this instance there was no work involved, just purely enjoying one another's company and being able to reflect on the events of the past year.

The party was put together in the same style that almost everything is regarding the NAA NY Metro Chapter. And that is by teamwork. Many of the board and committee members signed up to take care of a task and then got to the party early to help set up. There is always a unique sense of comraderie among the NAA community, which makes spending time with everyone enjoyable whether setting up or enjoying the wonderful food and drinks at the party.

Now it's time for me to address the food and drinks. Kirstin Boncher, of WhatToFeedYourKids, really out did herself and impressed us all with her very lively and delicious GFCF party spread. She made some simple dishes that tasted anything but simple. Everyone loved her chicken satay skewers with peanut sauce and the vegetable dumplings in asian dipping sauce. I can't imagine how many people must have asked her for the recipes to these outrageous tasting dishes. Now let's talk about the desserts....WOW! They were out of this world. No, truly they were. Being on a gluten free diet as I am has never been so easy.

If only I could eat Kirstin's food and GLOW gluten free cookies everyday. The cupcakes were as delicious as any gluten containing ones. I dare anyone to try to tell the difference. GLOW gluten free cookies also provided their amazing gluten free casein free cookies. The ginger snap cookies and the chocolate chocolate chip were our favorites. The lemon squares, made by Kirstin, were purely decadent...need I say more.

As far as drinks, Norene Chin was kind enough to pick up everything from water to juice to soda. But she really showed us what she can do by making a hot apple cider tea punch from scratch. This was a huge hit and really put many of us in the holiday mood. My husband Mark Berger was kind enough to pick up and haul over many bottles of wine that he carefully selected as well as sampled at the party.

All in all, the party was truly a major success. I am already looking forward to next years!

Special Thanks to GLOW Gluten Free Cookies for donating their gluten free/casein free cookies to our holiday party and you can find all the recipes at WhatToFeedYourKids.com